Josh and Mom a few weeks ago! |
I thought I would be able to control my emotions a little better with my kids there, but I was definitely wrong. It was made even more difficult as I watched my youngest son, who has such a tender heart, try to control his own emotions. He cried because I was crying and I cried because he was crying. My Mom kept her eyes closed for most of the time, didn't talk much and didn't seem to understand who any of us were. The little that she did say was hard to hear and hard to understand. I still can't decide if I want my kid's last memories of my Mom to be these!??
Last weekend I went to sit with my Mom while Matt (my hubby) went to speak at a fireside at a ward building, coincidentally, right down the street from my Mom's care center. Mom was asleep in bed when I got there (at 7:15pm) and stayed that way for most of the time I was there. For a little over an hour I sat there next to her, rubbing her head and shoulders while at the same time, organized photos of my Mom that I could find on my phone. Mom appeared a bit restless at times, but for the most part she laid there quietly and peacefully as I watched her and listened to her loudly breathing. I could tell she was awake a few different times and I tried to talk to her. She only said a few things . . . I told her that Matt was speaking down the street and she said, almost automatically, "Oh, where is he speaking?" And then during one of her restless moments, as she appeared to try and get comfortable, I told her to just relax and go to sleep. She said, "ok I will" and went quickly back to sleep.
My tears didn't stop flowing as I sat with her that night going through old photos of her . . . but there was something so peaceful and therapeutic about sitting there with her in the quiet and almost darkness. For the most part, she appeared at peace, and that made me feel peace.
As my tears continued to flow for half of our drive home, Matt asked me what it is that triggers my emotion. "When you feel emotional, what is it that makes you feel that way? . . . What are you feeling? What do you think about when you start to cry?" To be honest, I just can't pinpoint exactly what it is that triggers my tears and makes me so sad. My tears just come at such random times and I don't know how to feel half the time. I think I am safe to say that none of us family know how to feel!
I feel like I'm carrying around a big pot of mixed emotions all the time and then I often have to set that pot aside as I deal with my everyday life with my kids and calling! Part of me wants so badly for this to all to come to a close quickly and for her to be at peace once and for all. I want her out of the care center and with people on the other side that love and adore her. I want her to have her healthy mind back. I like to imagine the great reunion on the other side with her and her parents, grandparents and friends who have passed on before. I like to think that maybe when she is on the other side, perhaps I will somehow be able to talk to her and she will hear me . . . and understand me with her right mind.
But then of course the other part of me does not want this era to ever end! After all, I have not known my life here on earth without her in it! Life will be strange here without her for many of us! There will be no more shopping trips, luncheons, hikes, bike rides, walks, phone calls, Valentine cards, hugs, kisses, or anything from one of my favorite people in all the world! It will definitely take some getting used to and I sure hope she's able to stay close after she passes on! I don't know much about guardian angels but I sure hope that maybe she can be one of ours! I want to feel her close at all times!
I got the dreaded phone call from my Dad yesterday morning, coincidentally as I was sitting on my couch putting together a slideshow of photos of my extended family with my Mom ... I've felt compelled this last week to get going on it and to read up on memories with my Mom. "Mom was not responsive this morning . . they couldn't wake her up . . I have a feeling it's not going to be long . .", he told me. I've always known this day would come but had a hard time comprehending that this time is here.
My older sister Paige and I went out a few hours later, yesterday afternoon, and found her more responsive and awake than expected. She was even trying to open her eyes when we arrived, and attempted to sit up and even stand up. We used a sponge to give her water and with us on each side of her, holding her arms, we walked her down the hall about 20 feet and back and gave her drinks and chapstick. I gave her licks of a See's chocolate sucker and a small piece of a peppermint candy cane and we rubbed her head and talked to her . . with little response from her. She mumbled a bit and said some things that we couldn't quite make out.
Mom seemed agitated and uncomfortable and not able to relax very much. My Dad soon arrived and we quickly came to the conclusion that my Mom can no longer be left alone in that state. She is very unsteady on her feet and I guess lately has been found laying in strange places . . . in her shower with her clothes on, outside her door on the floor etc. Our fear is a fall and a broken hip or some other broken bone . . . and that would not be good at this point! My Dad and the nurse decided a mild sedation is probably best right now . . . to keep her calm, relaxed, unagitated, and in one place. We don't want her walking around anymore!
Dad gave her a blessing to know how much we all love her and to know how aware Heavenly Father is of her and her condition . . . and to tell her it's alright to go home. He mentioned the reunion that she will have upon arriving on the other side, among other things.
We all gave her a kiss, told her we love her and left her sleeping in her bed.
I want to go visit her again today with Paige and my Dad and anyone else who can come. I want to clean, cut, file and paint her finger nails, and just be with her.
It's hard to tell at this point if she will go sooner or later. It could be tomorrow and it could be a month from now . . I pray that it is soon and peaceful!
Here is one of the slideshows I recently created . . . this one is of my immediate family and my Mom! Click below . . .
My Mom and my fam flipagram!
Sure love her!
This link came up on my facebook feed when you tagged your dad. Your parents were my Mission Presidents, more like my mission parents. I can't imagine how hard it is to watch your mom (and your dad & the rest of your family) be affected by this horrible disease. My grandma died of alzheimer's disease, too, so this triggered a lot of memories for me. I also am a hospice social worker and see this process all too often. I just want you to know how grateful I am to have known your mom when she was well. I know you guys had to sacrifice without them around, but I'm SO grateful they served in the ELSM and that I was able to serve with them and learn from them. Your mom was so beautiful & classy, and such an enthusiasm for life and for the gospel. And she was funny! She has such a great smile. :) She taught with such compassion and love. She took a personal interest in each of us and made all of us missionaries feel at home. I could give another sermon on the things I learned from your amazing dad, too. He's a remarkable man. I loved seeing him at the mission reunion, but we so missed your mom. Give her a hug from me. This has got to be such a difficult time to go through, but I just keep thinking what a blessing it will be for her to have her mind & body be whole again. Hang in there. I'll keep your family in my prayers. Give your dad a hug from me too.
ReplyDeleteTake care, Holly Dixon (formerly Sister Hanson)
Thanks so much for your very kind words about my parents and so sorry for my very delayed response!:)
DeleteThanks for keeping this blog Mardi. I read when I can and I very much appreciate your detailed updates. Sure love your family! My heart aches for all of you. Love, Jill Stewart
ReplyDeleteI'm just now getting to respond to these comments on there. Sorry for my delayed response but thanks so much Jill! We love your family too!
DeleteI stumbled upon this post from Sarah's Facebook and I just want to comment and say thank you for sharing such an intimate time with your mom. It's incredibly difficult to watch a parent slowly deteriorate from a disease that can seem so cruel. The back and forth of your emotions wanting it to end but not wanting to live without your parent is something I've had to experience very recently as well. I'm so sorry for what you are going through, but one day both you and your mom can be at peace :)
ReplyDeleteExcuse my response coming months later, but just wanted you to know that I appreciate you and your kind words!
ReplyDelete